HIV/Aids in Sierra Leone

 

 

INITIAL THOUGHTS ON WHAT SHOULD BE DONE

 

Addressing an African summit on HIV/Aids, tuberculosis and other infectious diseases, in Abuja (Nigeria) on 26 April 2001, UN Secretary-General, Mr Kofi Annan, called for action against the world-wide scourge of HIV/AIDS, and outlined five key objectives for a global campaign:

*   Preventing the epidemic's further spread;

*   Reducing mother-to-child HIV transmission;

*   Providing care and treatment to all;

*   Delivering scientific breakthroughs; and,

*   Protecting the vulnerable, especially orphans.

In an evident show of determination to champion the fight against Aids in Africa, and possibly as the sequel to his call in Abuja, he has just appointed an ex Canadian diplomatic, Stephen Lewis, as his special envoy for HIV/AIDS in Africa.  Lewis is a former deputy executive director of UNICEF, and was once his country's ambassador to the United Nations.  He is easily recognised as an ardent supporter of various humanitarian causes around the world, especially in Africa, and was nominated by the OAU to serve on the international panel of eminent personalities, which investigated the 1994 genocide in Rwanda.  Focus wishes him well and commends Mr Annan for his timely intervention in the present climate of complacency, vainglorious prevarication, and criminal inaction by national political authorities.

Mr Annan might also have added to his objectives, specifically, the plight of rape victims of war, who are made into unwilling carriers of the Aids disease but are very often pushed to the periphery of official concern during the heat of prolonged warfare.  There is no doubt that in Sierra Leone this has been the case for quite sometime.  We have since come to know that several young women and under-age girls were, and are most probably still being, raped during the course of the civil war.  Writing way back in July 1999, with his usual stridency and chilling frankness, the Sierra Leonean radio journalist Lansana Fofana reported this trend, and concluded that the conflict had created an upsurge in the incidence of HIV/AIDS. (See his report: Conflict spurs the spread of HIV/AIDS).

However, as we have argued in the last two articles on this subject, HIV/Aids has visited our country through various other agencies and the civil war is certainly not the only culprit. For example, in addition to several reported cases of abductions, sexual violence against women and girls, including rape, unwanted teenage pregnancies and unsafe abortions, there are factors such as the nearly universal aversion to the use of condoms among both the poor and educated Sierra Leoneans, and other sexual behavioural preferences which cumulatively present increased risks for transmission of HIV.

 

The Task

The primary challenge for Sierra Leone now is for the country's authorities to take speedy advantage of the concerns that the world community is showing for this disease, with greater zeal and determination than before.

As one sees it, in view of the potential threat of an explosion of this disease in our country, three basic tasks confront us right now.  They are:

*   Identifying the routes in which the HIV virus is spread, on which one understands a lot of work has already been done on the ground by some Agencies and local groups;

*   Finding (as opposed to developing) existing cheap and fast ways of testing for the virus.  (It would be nice if we could 'develop' these ourselves but considering the lack of time, resources, and facilities to develop or deploy expertise, this is impracticable for Sierra Leone at present.)

*   Putting into immediate operation, a highly targeted prevention program for those who are not yet infected by HIV but are, nonetheless, considered to be at the greatest risk of becoming so.

If these can be achieved, or responsible and responsive minds and efforts can be focused on, at least, setting up mechanisms to begin to address them significantly, then national attention can thereafter, if not simultaneously, be concentrated on those people who are already in the clutches of the disease, i.e. present known sufferers. For them, our prime concerns can be paraphrased into two main objectives, namely:

*   Easing their suffering; and,

*   Making their life conditions qualitatively better.

In truth, however, none of these things will happen overnight even with the best-intentioned and most committed government in place.  There are several reasons for that, of which the lack of resources is merely one.

In making this call, Focus on Sierra Leone does not mean to downplay the tremendous progress that has been made by concerned groups inside the country, which operate in very difficult conditions under the aegis of the National AIDS Control Programme.  Nor can we proceed without acknowledging the invaluable help given by UN agencies like WHO, UNICEF and UNFPA, and NGOs such as the IRC, Merlin, and others, who have been monitoring the health of the country ever since.  All of them have carried out their operations with the backdrop of the civil war, during prolonged periods of heightened insecurity, restricted movement and the almost routine inaccessibility of most parts of the country.  If one adds the desperate competition for scarce resources, and the evident lack of support and commitment from the centre, the problems that they face become truly daunting.  Thus, even they will admit that there remains an awful lot of work to be done.

 

Need for visible national leadership commitment to the Aids programme

In our second article in this series of commentaries on HIV/Aids, posted here on 31 May, we concluded with the following prescriptive paragraph for the way forward:

“There is HIV/AIDS in the country. We cannot now turn back the clock. What is needed is a massive health education and awareness campaign. Recent history has shown that the only countries that have succeeded in minimising the spread of HIV/AIDS have done so by being open, up-front and changing the attitudes and behaviour of the population at large. Awareness of risks of unprotected sex contact (the condom) and basic medical hygiene, e.g. not re-using needles (not easy when medical supplies are scarce, but if the alternative is HIV/AIDS), are essential. Real leadership, not scapegoating, is needed to confront and tackle the problem, in the hope of meeting it before it becomes a widespread national tragedy.”

What we have in mind, in addition to advocating a huge mass education campaign about HIV/Aids, is the need for a far more visible and instantly recognisable commitment by the country's political and civic leadership.

The Abuja conference, to which we earlier referred, agreed a framework for action, with a set of priorities, which was approved by all the leaders present.  It placed at the very top of these priorities the need for the “leadership at national, regional and continental levels to mobilize society as a whole to fight HIV/AIDS, TB, and other related infectious diseases” and recommended “the provision of an enabling environment at all levels of leadership in society” as the best strategy for carrying it out.

Also earlier, in his speech to that conference, Secretary General Annan had put the onus squarely on the shoulders of African leaders themselves when he said:

"First of all, we need leadership.  And, my friends, that must start with you, the leaders of Africa.  Only you can mobilise your fellow-citizens for this great battle.  Only you can give it the priority it deserves in your national budgets.  Above all, you must take the lead in breaking the wall of silence and embarrassment that still surrounds this issue in too many African societies, and in removing the abuse, discrimination and stigma that still attach to those infected.  The epidemic can be stopped, if people are not afraid to talk about it."

More recently, the much-respected Washington Post columnist Jim Hoagland alluded to this need for sustained governmental action in an article on 16 May, in which he commented that, “AIDS is a deadly disease that needs to be fought by national governments, with significant international help for the world's poorest countries.  But fighting this modern plague requires focus, discipline and a hard-nosed realism that has too often been absent in the help industrial nations have extended to needy nations in the past.”  Hoagland then listed four obstacles or, as he described them, ‘horsemen of the Aids apocalypse’, namely, fear, ignorance, poverty and, rather pointedly, politics. We agree with him! 

Politics is one major reason why Aids has found our countries to be good breeding grounds for manifesting its virulence.  This must be so because, when one considers the experience of countries that have been successful in stemming and then controlling the disease, progress has been achieved only when there is collaboration between the government and various sections of the community.  Thus the lack of formal, structural, collaborative links between politicians and community organisations leads to inaction, encourages a state of denial, and cultivates a culture of complacency about HIV/Aids. But where the government takes a lead in working closely with local/public health authorities, the media, businesses, religious as well as community-based organisations, it can achieve instant successes. For example, it can use these links to inform the public about Aids, dispel the myths associated with the disease, and move the country from fear to preventive actions, which can be incorporated into community-based programs.  The need for links with businesses and companies operating in the country is self-evident because, apart from the issue of their corporate and social responsibilities, companies should know that it would be reckless for them to ignore the threat posed by the harmful effects of the HIV epidemic on their operations, including wiping out their workforces.

 

Truth-telling or merely being alarmist?

It is tempting and easy to be alarmist or sensational about HIV/Aids. Focus will not fall into the trap. Knowing the facts as much as we do, which seem to point to a major calamity in the making, we will not encourage Sierra Leoneans to become complacent. But what we can and will do, is to draw attention to the regular warnings, especially early signals, which those who have expertise in these matters have given in the past, and continue to give presently.

Since1981 when the first cases of Aids came to light, they say that the disease has claimed 21 million lives, the equivalent of nearly 1 million a year world-wide. Of this huge (and ever rising) number, 17 million are said to be of African lives. (Table: An African Plague).  Although hundreds of thousands have been saved from the infection through preventive action and by the application of new advances in treatment, poor African and other third world countries including our own, are yet to benefit from such techniques on any appreciable scale.

As far as early signals go, how widely known is the survey report about Sierra Leone, conducted by WHO in September 2000 and funded by the World Bank, which prospectively flagged the HIV problem? This report stated that “past figures suggest that Sierra Leone is at 8-10% seroprevalence, which is about the level at which cases start to grow exponentially”?  (In lay terms, ‘seroprevalence’ is the level of a bacterium or virus, in this case HIV, that can cause disease, in a population as measured in blood serum, e.g. see this prevalence map.) It also cited one medical doctor, who described the country's "emergency situation" as "a lethal mix for HIV transmission”, adding ominously that “population displacement, rape, occupying troops, women in desperate circumstances, insecure blood supplies, drug abuse, unsafe sex practices and insufficient control activities all add up to a disaster”.  There have been many earlier reports with similar sounding alarm bells.

Another difficulty that is always associated with the reporting or discussion of Aids is that of taboos. In effect, the problem boils down to a consideration of how to expel the myths surrounding the disease, and break the silence and stigma that is still all too often associated with it.

*  First, in the case of myths, without pretence to the slightest medical expertise on the subject on our part, it has to be said that just because you have HIV disease (or are HIV positive), you don’t necessarily have the disease called Aids.  AIDS, as we understand it, is just one classification of the HIV disease.  The experts say that everybody who has Aids has the HIV disease; but that not everybody with the HIV disease is classified as having Aids.  (Please see this easy-to-follow diagrammatic illustration of the life cycle of the virus.)

*  Second, the issue of HIV/Aids must be placed alongside the wider debate about the general health situation throughout Sierra Leone.  So, while we address the rather pressing need for action to forestall the spread of HIV, national authorities, i.e. government should never lose sight of the fact that there are other very serious diseases in our midst, which kill people just like Aids, e.g. cholera, typhoid, malaria, tuberculosis, dysentery, lassa fever, etc.  If scarce resources and the national effort are committed solely to Aids, there is a grave risk of leaving preventable diseases unchecked and unattended, only to become killers in the end.  An even greater danger is when those who suffer from these diseases are routinely and systematically classified as AIDS patients, and therefore assumed to be incurable.  Yet, we know that, though they are extremely dangerous, these diseases are relatively speaking easily curable nowadays with proper medical treatment; no one needs to die from them.  (There are several health reports on Sierra Leone, which point to other equally serious diseases afflicting our population, especially the poor.  See here, for example).

*   Third, it is no use starting or doing anything now unless there is, first and foremost, a real public acceptance that AIDS exists in Sierra Leone.  Any programme will become meaningless and a waste of precious time and resources.  Thus, a mass information drive should be initiated from the outset to inform, advise, and caution the population.  Because ours is also linked into an ongoing war, which is not yet over, the campaign must target all sides of the conflict.  It goes without saying that if HIV/Aids is rampant on the other side of the war divide then logic dictates that it will be rampant on this side as well.  It is most improbable for AIDS to be so discriminating in its virulence and method of self-propagation among our population.  In short, nobody should delude himself or herself that Aids is only a rebel syndrome.

 

Public acceptance

The issue of the public’s acceptance is crucial.  This point was made succinctly by a South African student, who is currently a Fullbright scholar doing a PhD in the US and also HIV positive.  Ngcoya, as he is simply referred to, made his comments during a visit to the State Department in Washington on June 15.  He said that he was a firm believer in people talking, just talking about Aids, and added:

"If you go to all the funerals, nobody mentions AIDS…  The only way we can fight AIDS is to talk radically about it…”

“And when it is covered, it is not because people care about those who are dying, but because of the policies or the political implications of the disease…  The only way that the world can change, the only way that we can progress through the problem of AIDS is by talking about it in an effective manner.  Government policies can only change when the people speak."

Our limited and, admittedly, hurried research for this commentary has revealed that there are commendable on-going programmes in Sierra Leone to help combat the spread of Aids/HIV.  However, those people we have talked to – and we have by no means talked to everyone involved in these campaigns – have complained that the average Sierra Leonean is nonchalant and alarmingly dismissive of both the dangers posed by the disease and the various methods that have been put before them for combating the spreading of it.  Most people have dismissed out of hand some of the preventive measures recommended to them, including suggestions that they must change their sexual behaviours and practices, and adopting preventive measures such as the use of condoms, etc.  Two former Aids workers who took the trouble to contact us by email since we commenced the discussion of this issue, told us that the programmes for which they used to work, had often been delayed or frustrated, and abandoned mid course because people saw them as an intrusion into their private lives.  One person, whom we have talked to, who is still active in one of these Aids programmes in Sierra Leone but is currently on a visit here in London, said that many people held suspicions about the motives of the campaigns and were under the erroneous belief that it was a conspiracy to limit their families.  Our contacts were all agreed that in addition to problems of illiteracy and ignorance, the public attitude to the disease was in general due to the noticeable absence of a high profile interest and involvement by those who are, at least nominally, the public face of the country.

 

Lessons from other countries, near and far

It follows, that in order to kick-start a more robust and sustainable nation-wide campaign in Sierra Leone, we need a positive, informed and committed political and civic leadership, to front the national effort to fight HIV/Aids.  At present, there is no evidence that our current leadership is alarmed enough by the existing well-documented signals, some of which we have discussed in this commentary.  We are neither convinced that the scale of the pending disaster has made any impression with them, nor sure that they possess both the moral and political courage that is necessary to mobilise the Sierra Leonean population towards an awareness of the dire situation facing them.  The prospects therefore already point to a false start, which will be not be easy to reverse.

Nevertheless, individual Sierra Leoneans are entitled, as Focus on Sierra Leone believes it too is, to contribute ideas to the ways in which society can organise itself to confront, without compounding, the problem.  That problem is simply: how to contain and treat the disease, and prevent it from escalating and getting completely out of control.  We emphasise prevention because it is the least painful, the least expensive and least requires expertise.  It is really down to the individuals and to civic society to determine how they wish to organise themselves to fight such a campaign.  The snag of course is that, from past and current experience, Sierra Leoneans have not proved themselves to be good at getting together to fight a common cause, if their attitudes towards one another in facing their country’s civil war perils are anything to go by!

Whilst we remain in a cocoon of self-doubt and a self-serving state of denial, we might care to look at examples from other countries where the disease no longer poses a threat but has become a catastrophic reality for their citizens, and how they have been tackling it in their respective ways.  It is to be hoped that such examples can be instructive in helping us first appreciate, then tackle with confidence, the threat that the diseases poses to our own fragile and war-depleted civilian population.  Three countries come to mind.  We shall deal with them briefly in turn.

 

South Africa

The South African situation is one in which ideology, politics and economics have conspired to make a tragic situation even more confused.  Sierra Leone cannot afford the luxury of arguing over who is to blame or where the disease came from.  It is undeniable that sexual habit is a contributory factor in the spread of HIV/Aids and, while change in habit is therefore necessary, medical and therapeutic help, once victims are identified, must be provided.  The mere existence of the disease should be a catalyst to ensure (a) its eradication; (b) helping those who are exposed to the dangers of contagion; and (c) treating those who have succumbed to the virus.  Every means of tackling the disease must be employed, be it preventive, curative, or diagnostic.  There is no need to intellectualise on the 'ifs' and 'buts' of its history, origin, or prevalence in a particular class, region, or whatever.

While one sympathises with the SA President’s unarguably sound intellectual position on his country’s affliction, which has been grossly misrepresented by the Western media – for which he must take a fair share of the blame - the bottom line is that his country has one of the largest numbers of sufferers and fatalities.  Therefore, the sooner President Mbeki and his government accept that ideological considerations are not the answer to the health and well-being of their citizens, the better will be the auguries for a realistic assault on the epidemic across the rest of Africa.  After all South Africa, at this very moment, potentially stands as a giant beacon for the rest of Africa to follow.  It must therefore give progressive leadership in this and other areas of nation building.

 

Zimbabwe

Zimbabwe is a different kettle of fish.  Sierra Leone stands the risk of ending in a similar position to it.  In that country, the HIV/Aids awareness is believed to be almost 100% and proper mechanisms and organisations have been set up to address the problem.  Unfortunately, this level of awareness has not been matched by any real success.  One drawback has been the unwillingness of the population to change behaviour and practice.  Last year, the government took a bold leap and imposed a further 3% levy, on top of income tax, on Zimbabweans, specifically for a nation-wide AIDS programme.  Zimbabweans characteristically rose to the challenge and gladly accepted the extra imposition.  Huge sums were collected into the Treasury.

But, guess what? Corruption!  Corruption!  Corruption!  According to a UNAIDS report, "about 15% of the many millions of dollars that have been collected, has been disbursed, and the whereabouts of the rest are unknown.  That which has been disbursed is also the subject of great debate, as there are now many hundreds of 'organizations' springing up all over the place, claiming to support Aids victims and their families, and all wanting a slice of the cake!"

Fancy that!  Less than 15% of the funds have been applied and the rest, over 85%, has just disappeared into thin air!  In addition, bogus ‘die-man’ groups are staking their claim to a share!  Nothing less than exploiting the sick.  Zimbabwe's tragedy is further compounded by the staggering revelation that the death toll each week is over 2000 and that the most educated are apparently the worst affected.

This is one road down which Sierra Leone need not go.  But with corruption still at the heart of government and public services in our country, the chances are that such initiatives will suffer similar abuse not least by the very people who would be charged with their implementation unless, by then, conscientious people are at the helm of the country’s affairs.

Other African examples

Other African examples of note include Senegal where Government policies were drastically changed when the prevalence of HIV/AIDS began to rise; Senegal's infection rate is now less than 2%.  Zambia, the proportion of pregnant teenagers who have been infected with HIV has fallen by almost a half over the past six years.  Uganda is fortunate in that its President has actively fronted the national attack on Aids, which has led to a drop in the proportion of the total population with HIV from 14 to 8 per cent.  Tragically, paradoxically, in efficiently run diamond-rich Botswana, statistics say that about one in three adults are already HIV positive - the highest rate in the world.  It is said that at least two-thirds of today’s 15-year-old boys will die prematurely from Aids.  The government has consequently made the fight against Aids its top priority, and has earmarked the profits from the sale of the country's precious commodity to fight the disease.

 

Thailand

Far away from Africa, the success story is that of Thailand.  Here, the most successful national programme is under the patronage of a member of their royal family, Princess Soamsawali, the wife of the Crown Prince and heir to the Thai throne.  She actively, rather than nominally, spearheads the Thai Red Cross Zidovudine Donation Programme, which has successfully raised funds from public donations to subsidise the drug, zidovudine, for HIV-infected pregnant women.  Thais have been less exercised by ideological considerations of monarchism, feudalism, republicanism or whatever and more by the content and focus of the leadership that the Princess is giving in their country's assault on HIV/Aids.  In this respect, she is playing a similar role to that by the late Princess Diana of Wales, who selflessly lent her high profile support to the campaign against the use of land mines.

In brief, the success of the Malaysian assault on the Aids epidemic has been put to:

*   A progressive and energetic response from all sectors and sections of Thai society.

*   The enlightened leadership of successive Prime Ministers which resulted in major changes in behaviour and, explained above, the visible and active involvement of a high profiled member of the country’s ruling house;

*   The successful creation of partnership from all sectors and levels of society to achieve the level of human and financial resources needed.

This is a noteworthy example, which we recommend to Sierra Leone to emulate.  However, we wonder from where or from whom the much needed national leadership and drive will come.

 

Conclusion

Sierra Leone has all the warnings it needs.  We also have the experiences, including the successes, failures, and mistakes of others, from which we can learn and draw lessons.  We have the declared commitment of the whole world community to mount a global assault on Aids.  The least that we can expect from especially our political and community leaders is for them to seize and take advantage of the opportunities before them, using all the avenues that are being offered, to mount a sustained attack on this scourge before it decimates the present and future generations of Sierra Leoneans.

 

© FSL

 

Further references:

*   African Development Forum 200 AIDS: The Greatest Leadership Challenge

*   Pope writes Kofi Annan for UN special meeting on AIDS

*   27 June 2001: General Assembly adopts the declaration of commitment on HIV/AIDS